It is now 28th October. My friend at last conceded and let the district nurse and case supervisor visit last Monday 22nd October. They recommended a change in medication, to an opiate based drug but my friend refused.
So a compromise was made and she is now on a long acting stronger version of Tramadol, (the medication she was already on) which is to be taken twice a day, but can be topped up by taking the lower dose Tramadol. This seems to be working some of the time, but my friend still has periods of pain.
The biggest problem we are facing is the rapid deterioration. Up until a few days ago my friend could still manage to get herself to the toilet unaided, even during the night and could still manage to have a shower or bath under supervision.
This has now changed, I have to take my friend to the toilet day and night and help her to wipe herself. I am washing her and she is spending most of her time in bed. She is eating very little even with taking tablets to improve her appetite.
I know things are going to be increasingly difficult from now on and I still hope there is an end in sight. Great Spirit help me through each day.
The Stages of Mesothelioma
Nothing has much changed since my last post and it is now 15th October. My friend continues to be in pain. Some days she manages to get up for a while others, apart from a shower or bath are spent in bed.
We never did get in touch with the MacMillan specialist nurse as my friend is so frightened of being hospitalised that she would rather put up with the pain.
I have tried reasoning, with a view to the fact that the hospital may be able to provide her with better pain management, but she will have none of it.
It is very difficult to sit by and watch when all I want to do is get her some help. I am a Spiritual Healer and Reiki Practitioner, but even this is of no use as my friend does not believe in it. Because of this I am unable to give her a hands on healing. I do send her distant healing daily, but I think she blocks it. Some people do this and she is one of them.
So our lives go on. I am getting increasingly tired and feel very guilty as I just want it all to end, which is effectively wishing my friend dead, which is awful. GREAT SPIRIT FORGIVE ME.
